Challenges with Access

Many people with IDD are categorically eligible for Medicaid as recipients of Supplemental Security Income (SSI). Medicaid is a critical source of coverage for people with IDD, yet not all providers accept it. This limitation narrows the available options for care and forces individuals and their families to travel long distances or face extended wait times to receive necessary services. The scarcity of Medicaid-accepting providers exacerbates the accessibility issue, leaving many without timely and appropriate care.

Despite having Medicaid or other insurance coverage, many individuals with IDD and their families still face substantial out-of-pocket expenses. These can include costs for medications, specialized therapies, assistive devices, and non-covered medical procedures. The financial strain of these additional expenses can be overwhelming, particularly for low-income families, leading some to forego necessary care due to cost concerns.

Accessibility of health care services and facilities is another critical concern. Some of the functional challenges inherent to intellectual and developmental disabilities make it difficult to seek, navigate, and understand health information. Many individuals with IDD face additional physical and, sensory, barriers that can prevent individuals from receiving the care they need.

Health care facilities must prioritize accessibility to create inclusive environments for all patients.

Read about making your work accessible.

Transportation is a fundamental consideration for accessing health care, yet it remains a significant hurdle for many people with IDD. Reliable, accessible, and affordable transportation options are often limited, making it challenging for individuals to attend medical appointments.³ This barrier can lead to missed appointments, delayed treatments, and worsened health outcomes, not to mention an inability to fully participate in their communities.